Down Syndrome South Africa (DSSA) is a voluntary association registered with the Department of Social Development, Non-Profit Directorate. Membership is comprised of DSA Associations, National Self-Advocates, Honorary and Co-Opted Members.

We are a national organisation, committed to improving the quality of life of people who have Down’s syndrome, promoting their right to be included on a full and equal basis with others. We are a registered charity and operate throughout England, Wales and Northern Ireland. We are governed by a board of trustees who all have lived experience of Down’s syndrome and give their time voluntarily.

We are a registered NPC with PBO approval that exists to support children with Down Syndrome and other disabilities through four distinct initiatives.

Our multi-disciplinary experts have served the health and psychosocial needs of thousands of teens and adults with Down syndrome since our nationally recognized Adult Down Syndrome Center opened in Park Ridge, Illinois, in 1992

General information booklet from an  occupational therapy perspective for babies with Down syndrome

The Down Syndrome Resource Foundation is located on the shared unceded territory of the Coast Salish Peoples, specifically the Kwikwetlem (Coquitlam), səl̓ilwətaɁɬ təməxʷ (Tsleil-Waututh), Skwxwú7mesh-ulh Temíx̱w (Squamish), and xʷməθkʷəy̓əm (Musqueam). Without their long history of stewardship and care of this land we could not provide a safe space for families and individuals with Down syndrome to learn and develop new skills.